Well mommy. I know that people have to get dressed. But I don’t want to get dressed. I like being naked!
It’s both hard to argue with his logic and easy to see why I will never arrive anywhere on time, ever again. Unless he is allowed to go sans clothing.
It's hard being me, yo.
A funny thing about a sleep deprived EEG in the morning with a little nap followed by chicken nuggets. It seems to be a recipe for “hellish afternoon appointment where your child sweeps every corner of the examination room with his ass” followed by extended car, on mom, and floor nap.
On a happier note, this new neurologist now understands that in his normal state Adam has no physical impairments whatsoever. He did stop misbehaving long enough for her to open the door when she asked to see him run and he took off like the Road Runner.
Her news for me was as good as I could hope for. His morning EEG was perfectly normal showing no unusual brain activity during sleep, waking, or strobe lights. He will have a sedated MRI next month to check brain structure to be on the safe side, but since his first one two years ago was normal, we expect this one to be also. His daily medication will increase. He is not considered epileptic at this point due to having only one unprovoked seizure combined with a normal EEG. There is a possibility, still, that he may out grow this and that he may never have another seizure.
The downside is that we will continue on the daily medication for two more years, when we were hoping to be off of it this June. Because he has had one unprovoked seizure, there is certainly a greater risk that he will have a subsequent one.
She also suggested that Vitamin B6 has been shown to curb some of the aggressiveness in children who take the daily medication. If he doesn’t settle down on the increased Keppra dosage that we could try the vitamin regimen as well. I should have waited until the third time he pushed her rolling chair (with her in it) and casually inquired, “Do you think the vitamin would help?”
All in all, I feel like we got the best news possible under the circumstances. Back to our regularly scheduled program of “Watch, Wait, and Worry.”
Apparently we hit just the right balance of sleep deprived and therefore will nap and avoided the sleep deprived therefore I’m going to be a total monster. Yay us.
Somehow, he was the most perfect angel ever during the EEG. A combination of snuggly blanket, tired boy, and a Bob the Builder CD all combined in the perfect mix. So the test was good. Let’s hope the results aren’t crap.
On the way home, we sang,
The sun goes down, the stars come out
and all that counts is here and now
My universe will never be the same,
I’m glad you came, glad you came
Little boy, you are one heap of worry, but I’m glad you came all the same.
